1. Do you only accept cancer patients?

We don't just accept cancer patients. All children suffering from life-threatening or life-shortening illnesses are eligible for our care.

2. End-of-life care admission process

We want to be a companion to colleagues and families as early as possible in the disease. Our goal is to relieve symptoms and increase comfort, both during and after treatments. Call us if you need guidance or active assistance from our palliative care team.
We respond to all inquiries promptly and plan care based on individual needs.

3. How does admission to palliative care work?

You can contact us by email or phone. We will first request a final report containing the child’s condition and the main stages of their medical history, and then, after discussing it with the healthcare team, we will arrange an initial consultation appointment with you. During the first meeting, we will introduce ourselves and get to know you. We will then book one or more shorter “introduction” discharge appointments, if required. The introduction appointment provides an opportunity for the child to get to know us and for us to get to know them, and to assess whether we can undertake their long-term care.

4. What should I bring to the first consultation?

You must bring your child and their medical documents to the first appointment. If the child's condition limits their ability to be transported, we can make an exception.

5. What should I bring for my child during their stay indoors?

An adequate amount of practical clothing appropriate for the weather – Please write the child’s name;
Hygiene products (labeled) – shower gel, body lotion, washcloth, toothbrush, toothpaste, comb, 2 towels, ear cleaning stick, antiperspirant/powder, etc.;
Appropriate size and quantity of disposable diapers, butt cream;
Regularly taken and occasional medications; - sufficient supplies, in their original boxes
Regularly used care products – e.g. sterile gauze pads, Betadine, adhesive plasters, suction cups, suction catheters, cannula care products, replacement cannula, etc.;
Special formula, feeding syringes, pump – if available.
You can bring your child's:
favorite chew toy, favorite food, drink,
usual bottle, spoon,
bib, cloth diapers, and wipes.

6. Do I need to bring a referral?

A referral from a GP is required once a year.
You must write our NEAK code on this: 13G2-A-4701

7. How far in advance can I book an appointment?

Bookings for school holidays start very early. Our booking system is open a year in advance. It is worth thinking ahead, but we can also arrange appointments with shorter notice by phone or email.

8. How many days can I request exemption benefits?

We can provide 28 days of respite care per year. We try to adapt the dates and their scope to the needs, depending on our capacity.

9. Will my child's schedule be followed at home?

We provide each child with a completely personalized care and follow the usual home routine. We will discuss this with you before admission.
It is very helpful if you write a summary of the child’s eating habits, what and how he likes to do, what his favorite activities are, his favorite body position, how to calm him down, and anything else you think is important. Our nurses call this the “User Guide”.

10. How much does the care cost?

All our services are completely free of charge.

11. I don't have to pay for the care, but I still want to support the house. How can I do that?

Visit our Support menu.

12. Can I move into the house with my child?

In the case of transit care and end-of-life care, you can stay with your child at all times. Our apartment with a separate entrance offers the opportunity for the family to be together.

13. Can I inquire about my child's well-being?

During the day, from 8 am to 8 pm, you can call the nurses on the house's landline number to inquire about the child's well-being.

14. Can I cancel my appointment?

Of course, you can cancel your booked appointment, but we ask that you do so as soon as possible so that we can still give it to someone else.

15. My child has a fever or a cold, can I bring him/her for treatment?

Since children in the house are more susceptible to infections due to their condition and we do not have the opportunity to isolate them at home, we ask that in such cases you stay home and recover together.